B-mode hemophilia saves someone's life medicine run out of goods more Medicines are not approved by country yet

B-mode hemophilia saves someone's life medicine run out of goods more Medicines are not approved by country yet
Called by the B-mode patient of hemophilia " Help medicine the grain " Thrombinogen complex. The son depended on earning a bare living " Help medicine " Have run out of goods! This lets He LanXiang feel nervous. She went around every large hospital of Beijing on the 13th, still " one was not even found " . Lan fragrant son Yang ZhiXin He is a B-mode hemophilia patient, the only effective medicine thrombinogen complex which treats this disease is facing the whole country in short supply. The Chinese blood friend's family collects and signs on the net, will supervise the administration bureau reflecting this question to Ministry of Public Health, national food medicines, hope to help the patient to find " Help medicine " . Case The son " Help medicine " Run out of goods prosperous to make a definite diagnosis of severe B-mode hemophilia at the age of 8 will Yang. Hemophilia is heredity bleeding disease, if lack the blood coagulation factor eight in the body to get first type hemophilia; Lack the blood coagulation factor nine to get B-mode hemophilia. "The domestic B-mode hemophilia patient's only effective medicine is the thrombinogen complex which contains the blood coagulation factor nine at present. " The blood head of the department Zhao YongQiang of BJ Union Hospital says, " there are more than 10,000 hemophilia patients that our country registers formally at present. Hemophilia has not radically treated the method yet at present, the best therapeutic method is substituting and treating and lacking anything to mend some, input the corresponding blood coagulation factor for the patient in time. " Guan Tao, general secretary of the Chinese blood friend's family, says, if hemophilia patient can't supplement the corresponding blood coagulation factor lacked in the body in time, perhaps know the joint and bleed repeatedly, cause the skeleton to be out of shape, amyotrophy; But viscera and intracranial hemorrhage may jeopardize the life. December 6, Song Shan (assumed name) Brought the son suffering from hemophilia by oneself to BJ Children's Hospital, the hospital said that there is only a medicine. Shan Song lead child pass through many hands or places, turn into BJ Union Hospital anxious, yet find medicines. On December 13, when Song Shan reaches the hematology of BJ Children's Hospital, still there are no medicines in the hospital. Song Shan says: "Wonder why is in short supply, what reason it is on earth, when there can be medicines, explanation that no one has given all the time. Run out of grain food the same, have medicine child to live, succeed. " Investigation " help medicine " Hemophilia in more general Beijing of shortage is treated the registration to mainly go on by BJ Union Hospital, BJ Children's Hospital and three cooperation of Peking University the People's Hospital. Peking Union Medical College Hospital is responsible for registering the centre to report to national hemophilia to diagnosis and complex treatment of patient and hemophilia registering, the children's hospital is mainly responsible for hemophilia infant's making a diagnosis and giving treatment, the People's Hospital is responsible for the emergency call of hemophilia. The reporter investigates on the 13th to know, BJ Children's Hospital, Peking University the People's Hospital and BJ Union Hospital say, " complex of thrombinogen " At least continuously one week of shortage. Guan Tao says: "As to hemophilia patient, the complex of thrombinogen is like the grain, if broken medicine run out of grain, even serious than to run out of grain. " Near during these days, the Chinese blood friend's home receives the telephone that a lot of place ward mates made, reflect the locality one after another " The complex of thrombinogen " Have already broken medicines. Guan Tao says on the 13th: "We are sent a telegram to, inquire ' the complex of thrombinogen ' stores the situation by the rescue center of domestic 31 of hemophilia in the capacity of patient, 25 rescue centers show clearly that has already lacked this medicines. " The reporter searches for in the network " B-mode hemophilia " Find, hemophilia patients such as Henan, Tianjin, Wuhan and other places are in not " there are not medicines that can use "ing at present Predicament. Visit the reason Hemophilia " Help medicine " Not been criticized compared with first type hemophilia yet, why only B-mode hemophilia patient appears " medicine is neglected " ? Some hemophilia patients leave a message to inquire in the network: "Thrombinogen complex shortage, do not nowadays know whether to have? The patient has very unstable condition now, need relieving the condition badly! Can hope for some information! " The blood head of the department Zhao YongQiang of BJ Union Hospital says, the first type hemophilia patient's medicine has a blood coagulation factor eight of the blood plasma source, and the gene recombinates the blood coagulation factor eight, so the medicine is supplied relatively more. And for treating the blood coagulation factor nine of the B-mode hemophilia, only thrombinogen complex which contains the blood coagulation factor nine of the blood plasma source at present, the blood coagulation factor nine that the gene recombinated although has already finished the medicine clinical trial, and register in the national related departments, but wait to obtain approval. In addition, Zhao YongQiang says, the complex of thrombinogen is the strategic medicine, its not only B-mode blood friend patient wants to use, massive haemorrhage,etc. should be used postpartum of the wound, first aid and some women, the high demand of this more serious kind of medicine. And the blood coagulation factor of treating the first type hemophilia only has first type hemophilia patients to use eight times. Extend and read The national ward mate jointly asks " Help medicine " Ministry of Public Health convene the intersection of medicine and enterprise confer the intersection of Chinese and the intersection of blood and the intersection of house and website of friend, release " B-mode administration, patient of hemophilia, ask for emergency help and solicit signing " a few days ago already, demand the ward mate to submit Ministry of Public Health and national food medicines and supervise the administration bureau reflecting the complex shortage question of thrombinogen, hope the national related departments solve as soon as possible. Up to 12th, " blood friend's family " Have already received 225 open letters signing and supporting. Guan Tao hold whom 225 people sign 12 " whether thrombinogen complex in short supply to wait for, solve while being anxious " find Ministry of Public Health. Guan Tao says, Ministry of Public Health pays close attention to this, has already informed of the relevant manufacturing enterprise to the meeting of Ministry of Public Health, seek the solution. Ministry of Public Health will be positive and enterprises and the relevant department communicate, hope to solve as soon as possible. It is gentle in group /pursue according to Xinhua News Agency

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