Chinese self-closing disease patient exceeds a million Need the society to forgive and admit even more
Yesterday, a medicine relevant expert's doctor in Guiyang came to the love home of Guiyang, volunteer medical consultation for the self-closing disease infant. Recently, there are readers that send messages to pour out on the interdynamic platform of this newspaper, as parents, bring up children who suffers from self-closing disease, hard to get along with and many. Yesterday, reporters visited the recovery centre of love home, a distance contacted a group of self-closing disease infant. It is difficult that the school-ager enters school " I call young space, 14 years old this year. " This boy, is answering reporters' question rapidly with the slow language at the moment. The grandmother tells reporters, the little space " graduates " from the love home And then study in in 5 primary school successively, study in second grade, the intersection of each institute and with " cure disease, come on " school intermittently In order to let the small space enter a higher school from refusing. In medical science, self-closing disease is the lifetime deformity, almost impossible " cure " . In 2008, household's efforts, the peaceful primary school of leather beach of the ditch agrees to admit the small space. Through two year more than study, small space improve a lot with the intersection of people and the intersection of person who associate and respect in intelligence, independence. At the end of 2010, mother in the little space loses the ability to work due to illness, the small space comes to Guiyang and grandparents' life. The old man has found the primary school near the family many times, has asked them to accept children to study, but is refused, even schools are responsible for being called: "Intellectual disturbance, disabled all of us can accept, charge self-closing disease. " The lifetime deformity is cured difficultly in the love home, a group of self-closing disease infant will demonstrate the unusual behavior of crying and screaming, laughing, staring flankly, rolling about etc. for no reason. Through the long-time intervention treatment, some children can learn to support oneself, can realize and exchange with people. According to the introduction of Zhao AiXin, headmaster of home of the love, although self-closing disease is the deformity that can't be cured all the life, but if find early, intervene through the professional method, the self-closing disease patient may learn the independence, that incorporated into normal social human communication. The intervention treatment of the self-closing disease patient is a long-term and unremitting course, need family and help and support of the society, headmaster Zhao says, a lot of people do not find out about self-closing disease, think they are the lunatic or psychosis. In fact they understand love too, will not just respond, but every point that people offered loves, they can all experience. "I think what they need even more is forgiving and admittance of the society. Return to the social way endlessly at present, there are 35 million self-closing disease patients in the whole world, among them, the self-closing disease patient of our country has already exceeded 1 million people. At present, the special self-closing disease job leading group has been established in China Disabled Federation, Beijing, Jiangsu, Shenzhen and other places have made the self-closing disease patient's subsidy standard too. In Guiyang, because is low developed, this special colony has not obtained fund subsidies yet, only two non-governmental organizations have receiving ability of dozens of people. Find the road in life for the self-closing disease infant, need the various circles of society to stretch out the assistance, help them to return to the society. (Wang HongXia)
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