Chinese hemophilia patient seeks medical advice transprovincially the phenomenon will be relieved

Chinese hemophilia patient seeks medical advice transprovincially the phenomenon will be relieved
Beijing, November 13 of China News Service (reporter Zeng LiMing) China Mainland exceeds 100,000 hemophilia patients, and only more than 5,000 people accept that standardize the treatment at present. Because the medical organization with accurate diagnosis and complex treatment ability of our country is insufficient, make a lot of patients seek medical advice and have no door in the locality, have to seek medical advice across the province. And the one that announce formal start here today " The development projects of the centre of making a diagnosis of hemophilia in China of Bayer " Will change this kind of state, will seek medical advice to bring convenience for the patient. Will organize, sponsor by the intersection of blood and credit by Chinese Medical Association, Bayer medicines and health protection invest 13 million RMB " whether China hemophilia make a diagnosis development projects of in the center " ,Plan to establish 40 of hemophilia centre in 30 key cities of the whole country in five years, set up in the courtyard interdisciplinarily to make a diagnosis and give treatment to cooperate in the group, improve the competence of making a diagnosis and giving treatment synthetically of clinic of hemophilia, offer to patient nearby, science and overall making a diagnosis. And through patient's educational activities, improve patient's understanding of disease and attend to ability oneself, thus lower disabling the fatality rates of the hemophilia patient. Project expert, the intersection of Chinese Medical Association and the intersection of blood and credit it knows General Board, Ruan, academicians of Chinese Academy of Engineering, to be long to claim while being dedicated, accurate diagnosis of hemophilia, it is relatively complicated for gene to diagnose especially, complex treatment professional lines relatively better, need interdisciplinary professional medicine, protect, offer overall medical treatment service for patient to manage with disease in the skill team. The morbidity of hemophilia is relatively low, the input in this respect of the hospital is limited, most domestic the first, second and third hospitals do not possess accurate diagnosis and ability of complex treatment hemophilia, difficulty that the patient seeks medical advice. This project started today will improve the current situation of making a diagnosis of China's hemophilia effectively. Professor Zhao YongQiang, group leader of group, says that head of the department blood of BJ Union Hospital, hemophilia in Beijing area cooperate: It is apt to cause the deformity or death that the hemophilia patient must be less than treating standardizedly; The diagnosing rate is low and disabling and leading the high reason to the public have insufficient understanding of hemophilia at first at home, a lot of patients have missed the chance to make a diagnosis and give treatment and treat in time; Because is relatively rare, many clinicians, to the scarce understanding of this disease, it is apt to cause misdiagnosing and leak and examine. The experience of the developed country proves, if the hemophilia patient can win doctor's specialized guidance, scientific complex treatment to accept whether whether it is regular,totally can life as normal people. Hemophilia is a kind of common heredity bleeding disease caused by the fact that the eighth factor of blood coagulation lacks, have no method to effect a radical cure yet so far. Statistics reveal: The hemophilia morbidity is about 5/100,000, nearly there are 400,000 patients now in the whole world, China has eight to 100,000 patients at least, but the hemophilia patient only less than 5% receives treatment, about 90% of the hemophilia patients have not accepted the normal treatment. (End)

|