Patient trends towards breast cancer youngerly It is particularly obvious to have illness coming on around pausimenia

Patient trends towards breast cancer youngerly It is particularly obvious to have illness coming on around pausimenia
The life can't wait. Solvency should never obtain the obstacle of health care as individuals. The reason why a country will set up the system of medical insurance, in order to avoid " medical expenditure of the calamity " takes place to more families Recently, the media reported a rural boy in Anhui suffers from the experience of the rare disease. He under two, but baffled to have a fever first and a half years. Run a lot of hospital, spend 140,000, make a definite diagnosis of until morbidity only 1/20 rare disease of Wan just - -Bright dose of rare tissue cell hyperplasia diseases. However, because family are unable to gather enough the operation fee of 300,000 yuan, the boy leaves this world finally. To the public, rare disease is a strange concept. In fact, famous physicist Hawking suffers from the rare neural muscle disease, commonly called as " freezing people gradually " . Rare disease has a lot of types, " porcelain baby " as may be fractured when making a piece of sneezing (become bone not complete disease) , the hair eyebrow is white " The moon child " (albinism) , the one that bleed once touching gently " Hemophilia " , painful all over all day " It is ill that France mines " When. These blame the disease not only ordinary people are not familiar with, even a lot of doctors feel strange, it is very general to leak and examine, misdiagnose, manage the phenomenon by mistake. Modern medical science divides disease into two big classes, namely common disease and rare disease popularly. At present, the definition of the rare disease of different countries is different to some extent. World Health Organization accounts for the total population 1% of the ill number of people. The following diseases are defined as the rare disease, there are 5000- 6000 kinds of rare diseases already confirmed at present, account for 10% of the human disease. According to this conjecture, the rare disease patient exceeds 10 million people at the present stage in our country. On the medical circle, medicines curing rare disease are called vividly " orphan medicine " . Because there is little ill number of people, research and develop the high cost, it is very high to price, generally there is only a few foreign drugmaker's production. Our country has not defined rare disease clearly yet, " orphan medicine " Without domestic medicine, the rare disease patient can only use expensive imported medicine, and are nearly all at one's own expense, the financial burden is heavy. In fact, to a lot of rare disease patients, so long as diagnose early, treat early, can well live like normal people, hemophilia is a typical example. By the look of visual angle of hygiene economics, let the rare disease patient get the effective treatment early, can avoid disabling the medical treatment that brings to consume due to illness, save more social cost. Because a social value which healthy persons creates, well-above it and cure the disease the cost. This is a kind of investment reciprocating, but not consuming expenditure. So, in some developed countries, " orphan medicine " All enjoy the special preferential policy with the rare disease patients. For example, U.S.A. stipulated through " orphan's medicines bill " in 1983 any commercial insurance company could not refuse the insuring of the rare disease patient, the rare disease patient only needs to pay more premium of 1000 dollars than common people every year, can use any medicine, all expenses are undertaken by the insurance company. In our country, most rare disease treatments need to be at one's own expense. It is calculated that from social total cost, this may not be the most economic hygiene tactics. From another viewpoint, health right is a basic human rights. No matter one is rich or poor, should all obtain the right that health survives, this is a bottom line of social justice justice. To most families, once the rare disease of experience, often mean that " medical expenditure of the calamity " takes place . In fact, solvency should never obtain the obstacle of health care as individuals. The reason why a country will set up the system of medical insurance, the purpose, in order to avoid " medical expenditure of the calamity " takes place to more families . So, the system of medical insurance should cover common disease, should give consideration to the rare disease. In the social field, " wooden barrel theory " " short board effect " of China Exist too. A human-oriented government, ought to pay close attention to the health problems of a few disadvantaged groups preferably. Because the changes in temperature of a society, not temperature mark by the powerhouse one, is by the weak's temperature mark. Perhaps someone thinks, the rare disease only concerns " a few people " Rights and interests,and "a few people " Not so good as after all " The majority " It is important. In fact, this is a mistaken idea. Rare disease and common disease are relative. Under the condition of suring, some rare diseases may be turned into common disease, turn from little probability disease into a great probability disease. The same, " a few people " With " the majority " Not also absolute, within the range of suring, everybody may become " a few people " . So, whether can safeguard " a few people " Rights and interests,concern everybody destiny. At present, our country needs setting up the legal system regarding rare disease and orphan medicine badly. Because the life can't wait. This just as a rare disease infant's mother speaks: "It is impossible for parents to look after children all one's life, but the system is all right. " (white sword peak)

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